Ok, here goes... (if you're reading this and have no idea who MGK/EST is or what I mean by the movement, you'll be confused lol.)
So after a really amazing night finding out when MGK's Lace Up is being released in stores (October 9, 2012/Lace Up Day) and hearing that EST will be releasing a mixtape Monday, August 13, 2012 called EST4LIFE, something crazy started to happen. I wasn't directly involved in it, and maybe that doesn't give me the right to comment on it, but I will anyway. It appears that there are members of the EST family that have a problem with HOW LONG others have been a part of the movement. When I first saw someone tweet about people talking shit I didn't really pay attention to it. After three people that I follow felt like they had to defend themselves against the negative people/comments, I thought to write something about my feelings. As far as I know the idea behind EST, the MEANING of it is "Everyone Stands Together"... how, if that's our motto, are people going to talk smack about anyone that claims EST as their family? I haven't been a fan since Kells spit his first verse but does that make me LESS of a fan? Does that make it any less important that I hear truth in every single word that man says? Did my length of being a fan make my reaction to hearing See My Tears any less profound? (I cried like a baby because I felt like he was taking words from my mind and saying them). I love the idea of EST and I love having a group of people with a common goal, to support the hell out Kells and the guys AND each other. I loved the idea of belonging to a group of people that has struggled like I have. I feel like I could really make some good friends on this journey, I think that as much as K is on a journey we are too, and I was excited to connect with a ton of laced up people on Twitter and Facebook. I didn't always feel this way though. The reason I have just become vocal on Twitter and Facebook about my love for all things MGK & EST is that I thought I wasn't good enough to be part of the movement. I always considered myself part of EST but I didn't know if it was ok to love him as much as I do and be vocal about it due to the fact that I only became a fan just before SXSW last year. I thought I would be called out as a poser, I thought that I wouldn't be welcomed. Once I watched more Kellyvision episodes, listened to more of his music as it came out, kept feeling the way I felt when I heard his words, I knew that there was a reason I felt the way I did. I have only spoken to a few members of the EST family as of yet but I hope that I can find more laced up people in Chicago. I introduced my best friend to MGK's music and she loves it to. We both claim EST as our team. I might not be able to see every Ustream, but I sure do try. Wild Boy isn't the first song of his I heard, but I do like it. I might not have seen him every time he was here in Chicago, but I did see him the last time he was here and I RAGED HARD. I might not be able to eat, sleep and breathe the movement but it's in my HEART. I have been sick and in & out of the hospital for the past 4 years, this movement helped me feel like there was hope. It gave me something to believe in and showed me that there are tons of others out there bound by a common love for a regular kid like us. I don't think the amount of time you've been a fan of MGK and EST is the point. I don't think that shows people how LACED you are. I think how you represent the team shows how laced you are. I think how MUCH you love Kells, the guys, the music and the movement show how laced you are. I LOVE THIS FAMILY! I may not be in high school, or even college age anymore, I am an adult with a great love for an artist, his music and his team. I don't know Machine Gun Kelly, Kells, K... But I feel like I would really like to chill with him if I had the chance. If I met him I would tell him how much he has helped me get through some really tough shit. I'm not "in love" with him the way a teeny bopper loves Bieber. I love him in the way that a person loves a poet or author. His words speak to my heart and I think that's the whole point. If you consider yourself part of EST, I consider you family and that's my bottom line. I don't ask people how long they've been a fan, I don't care.
Lace Up!
xoxo
HG www.twitter.com/purpleturtles33
Wednesday, August 8, 2012
Thursday, June 28, 2012
It could be anything...
I only slept for about an hour total last night so this post might be really scattered and all over the place. I have been trying to get back to sleeping normally but it hasn't worked as of yet. I may be delirious right now... Just got a facebook chat message from someone I went to high school with and this dude is talking crazy. I don't know if this is real or if I'm being punk'd. What. The. Fuck?! The stuff he's telling me isn't actually funny, but I can't stop laughing. Lord have mercy, please. Why is this happening right at the moment I decide to type whatever happens for the next 30 minutes??? This is so weird! Ok, so I am just going to ignore that for right now, maybe hide myself on FB so I can focus a bit. Ahahahaha! @mobangmedia says "How u a BO$$ bitch and you can't balance a checkbook!" (RT'd by @johnnymarkjacob) THAT is hilarious and a VERY good question! If anyone has an answer I would love to know what it is in my comments!
Today I went for a mani-pedi with my wonderful sister @LSayles9 and we had a great time! She actually bought a bottle of champagne from the liquor store she used the ATM in and brought it back to the nail salon. She's a trip, my sister! A lady that was getting her toes done asked what the occasion was for the champy and I said "It's Friday!". Friday it is and I am itching to get into a little bit of trouble I think. Not like trouble, trouble but I think I might want to go out tonight and have some fun. Or maybe I want to go play mini-golf. I just saw a tweet about the Justin Bieber Boyfriend Remix (by @Cityhall03). I marked it as a favorite for two reasons, 1) because I liked what he said, 2) I am going to do an entire post about JBiebs and his remix and I want to remember it. I don't want to forget what he said cause it was pretty funny. If you want to see what he said follow him and look, it was funny and totally true. The Biebs trips me out, for real. I was a boyband head back in the day so I totally get the whole screaming teenage girl thing. But he's like a fuckin' eclipse, you can't look right at him for too long or you'll go blind. He's an enigma. Or whatever.
This post was saved as a draft and I just decided to post it now cuz it made me laugh haha.
xoxo
HSG
Today I went for a mani-pedi with my wonderful sister @LSayles9 and we had a great time! She actually bought a bottle of champagne from the liquor store she used the ATM in and brought it back to the nail salon. She's a trip, my sister! A lady that was getting her toes done asked what the occasion was for the champy and I said "It's Friday!". Friday it is and I am itching to get into a little bit of trouble I think. Not like trouble, trouble but I think I might want to go out tonight and have some fun. Or maybe I want to go play mini-golf. I just saw a tweet about the Justin Bieber Boyfriend Remix (by @Cityhall03). I marked it as a favorite for two reasons, 1) because I liked what he said, 2) I am going to do an entire post about JBiebs and his remix and I want to remember it. I don't want to forget what he said cause it was pretty funny. If you want to see what he said follow him and look, it was funny and totally true. The Biebs trips me out, for real. I was a boyband head back in the day so I totally get the whole screaming teenage girl thing. But he's like a fuckin' eclipse, you can't look right at him for too long or you'll go blind. He's an enigma. Or whatever.
This post was saved as a draft and I just decided to post it now cuz it made me laugh haha.
xoxo
HSG
Friday, May 25, 2012
Friday
9:31 p.m.
I didn't sleep last night so I am totally wired right now. I'm not sure what the point of this particular post is yet, I might know by the end. Ha. I went to get mani-pedis with my sister today, we had so much fun! She had me crackin' up and it was really nice to hang out with her just the two of us. I get interrupted every 5 minutes I swear. If I could slap people via Twitter I would do it all the fuck day long! Seriously, there are so many people that I want to beat in the face it's not even healthy. I bet there's a bunch of people that would wonder if it was them if I publicly stated this fact. My answer to that is "Yes, it is you I am talking about." hahahahaha. That's me laughing at myself, I do that so I don't feel like an asshole. Which happens to be quite often. Son of a bitch! This is never going to turn into anything productive because things keep happening and I get distracted and then come back to it 20 minutes later. Peace for now.
xo HG
10:32 p.m.
I didn't sleep last night so I am totally wired right now. I'm not sure what the point of this particular post is yet, I might know by the end. Ha. I went to get mani-pedis with my sister today, we had so much fun! She had me crackin' up and it was really nice to hang out with her just the two of us. I get interrupted every 5 minutes I swear. If I could slap people via Twitter I would do it all the fuck day long! Seriously, there are so many people that I want to beat in the face it's not even healthy. I bet there's a bunch of people that would wonder if it was them if I publicly stated this fact. My answer to that is "Yes, it is you I am talking about." hahahahaha. That's me laughing at myself, I do that so I don't feel like an asshole. Which happens to be quite often. Son of a bitch! This is never going to turn into anything productive because things keep happening and I get distracted and then come back to it 20 minutes later. Peace for now.
xo HG
10:32 p.m.
Thursday, May 10, 2012
World Lupus Day... Celebrate???
Today is May 10, 2012 World Lupus Day. I wish I could celebrate, I wish it was a day that meant good things instead of painful things. Eventually, this day will be a real celebration but until then I am afraid to even get excited about feeling a little bit better. Most of the time there are small reminders that Lupus is looming right around the corner, always. Then there are some days where it feels as if Lupus never even existed in my world. It feels as if I've gone back to the years before I got so terribly sick, before the days I couldn't even get out of bed, before the days when "I'm sorry I can't, I'm not feeling well" became a disappointing part of my conversations with almost everyone. There are days when I can walk around the neighborhood with my 5 year-old son and he gets tired before I do. There are nights that to be honest with you I barely remember because I was out with my husband doing the things that normal young couples do! But it seems like for every one day that I get to forget about having Lupus, I am charged with 2 or 3 days of being painfully reminded with every breath I take. Medication, ice packs, eye pillows, teas, pain patches, the T.E.N.S. unit and more are all things that I have in my "bag of tricks" to use during a hard "lupus day". That's what I say when I feel like lupus is just kicking my ass to any degree. Take the rainy week we had a few weeks ago. I was not expecting to be hit so hard when the barometric pressure changed as I have been doing slightly better than normal lupus-wise the last few months. But even as the barometer just began to move I could feel it in my bones. I woke up the next day and literally couldn't move. Lupus-1 Heather-0. It was terrible. I had been at a wedding the night before so I thought maybe I was just a little stiff from dancing in 5 inch heels. The next day when the weather proceeded to suck and so did my state of being, I knew that the dancing and the heels had little to deal with what was happening to me. I began collecting my lupus combating arsenal, that I mentioned above, and settled myself on the couch for however long it would take for the inflammation, joint pain and fatigue to leave me the hell alone. It took 5 days. I am not in any way exaggerating, I woke up on Thursday and didn't feel like my whole body was going to fall off and knew that lupus had loosened her grip on me. At least for the time being. Lupus-5 Heather-1.
In October 2011 I started infusions of the new Lupus medication Benlysta. After every infusion I feel a little bit more like my old self. Like I can maybe do things that I used to do! I say maybe because I used to be super athletic and played sports. I'm totally out of shape now so a few other things would have to happen before I could definitively say that I can do everything I used to do. Really the bottom line is that I can do MORE than I could before October, I have less joint pain, I can sleep and I don't need to take as much pain medicine. I think that's why I was so surprised by the full scale attack I received from my immune system a few weeks ago. I had been doing really well, well enough to be able to publicly talk about it and not thing I'm jinxing my progress or the drug's effectiveness. I feel that I need to talk about it and talk about it a lot because I have been hearing atrocious things about this medication and it is all from people that heard from someone who heard about someone. Listen, I'm on it and I know what's up. This is the score here Benlysta-8 Lupus-1. I give Lupus one point because she's a sneaky bitch and jumped me a couple weeks ago like I told you. I have spoken to a few different people and I get angry when I do because they are just not being properly educated about this medication that by all intents and purposes is working for me. Doctors need to do a better job of making this drug available and that means they need to learn more about it. I'm lucky b/c my rheumatologist is brilliant, some people don't have that. If you are reading this and you have Lupus I encourage you to talk to your doctor about Benlysta as soon as possible. Don't let anyone tell you anything about it unless they are on it, because if they aren't on it they don't know. If you have questions, ask me. If someone you talk to has questions or wants to argue about it tell them to come talk to me. I love a challenge.
One day we will be able to celebrate World Lupus Day in the real sense on the word. But for right now, let's celebrate by educating as many people as we can. We need to make this illness as well known and talked about as AIDS and Breast Cancer and until we do we won't have enough support or enough money to do what needs to be done to find a cure. At least that's how I feel. I am doing whatever I can to raise Lupus awareness, and I am trying to encourage my friends, family and followers on Twitter to do the same. We just have to keep talking about it, writing about it, singing about it. Keep it in the news, in books, on TV shows and put it in movies. Make it so that there's no way our world can ignore it! I am making a film called "What Do You Know About Lupus?" and I hope that will help in some way to get the word out. But until I can say that I have conquered Lupus, that I've kicked her ass instead of her kicking mine... I won't feel right celebrating. It almost feels like a challenge to Lupus and I don't want that kind of Karma. I'll celebrate when the score card shows we beat Lupus once and for all.
Faith, Hope & Love,
HG
(@PurpleTurtles33 on Twitter)
In October 2011 I started infusions of the new Lupus medication Benlysta. After every infusion I feel a little bit more like my old self. Like I can maybe do things that I used to do! I say maybe because I used to be super athletic and played sports. I'm totally out of shape now so a few other things would have to happen before I could definitively say that I can do everything I used to do. Really the bottom line is that I can do MORE than I could before October, I have less joint pain, I can sleep and I don't need to take as much pain medicine. I think that's why I was so surprised by the full scale attack I received from my immune system a few weeks ago. I had been doing really well, well enough to be able to publicly talk about it and not thing I'm jinxing my progress or the drug's effectiveness. I feel that I need to talk about it and talk about it a lot because I have been hearing atrocious things about this medication and it is all from people that heard from someone who heard about someone. Listen, I'm on it and I know what's up. This is the score here Benlysta-8 Lupus-1. I give Lupus one point because she's a sneaky bitch and jumped me a couple weeks ago like I told you. I have spoken to a few different people and I get angry when I do because they are just not being properly educated about this medication that by all intents and purposes is working for me. Doctors need to do a better job of making this drug available and that means they need to learn more about it. I'm lucky b/c my rheumatologist is brilliant, some people don't have that. If you are reading this and you have Lupus I encourage you to talk to your doctor about Benlysta as soon as possible. Don't let anyone tell you anything about it unless they are on it, because if they aren't on it they don't know. If you have questions, ask me. If someone you talk to has questions or wants to argue about it tell them to come talk to me. I love a challenge.
One day we will be able to celebrate World Lupus Day in the real sense on the word. But for right now, let's celebrate by educating as many people as we can. We need to make this illness as well known and talked about as AIDS and Breast Cancer and until we do we won't have enough support or enough money to do what needs to be done to find a cure. At least that's how I feel. I am doing whatever I can to raise Lupus awareness, and I am trying to encourage my friends, family and followers on Twitter to do the same. We just have to keep talking about it, writing about it, singing about it. Keep it in the news, in books, on TV shows and put it in movies. Make it so that there's no way our world can ignore it! I am making a film called "What Do You Know About Lupus?" and I hope that will help in some way to get the word out. But until I can say that I have conquered Lupus, that I've kicked her ass instead of her kicking mine... I won't feel right celebrating. It almost feels like a challenge to Lupus and I don't want that kind of Karma. I'll celebrate when the score card shows we beat Lupus once and for all.
Faith, Hope & Love,
HG
(@PurpleTurtles33 on Twitter)
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